bird watching, anti-racism, and living with a chronic/painful disease
Topic change! On the bird feeder so far Ive seen one chickadee, one goldfinch, and many appearances of house and chipping sparrows. I haven’t walked with intentional birdwatching as the focus since I posted last. But I do know there’s a starling pair (I assume? though I only ever see one at a time) with babies in the gutter of our neighbor’s house. WOW. Those parents work hard!
I’m tempted now to stop typing because this is getting long and I don’t want people to associate LONG READ with what I write, but I do want to get out a few more thoughts.
I’m not sure if I’ve written on here before about the fact that I have an autoimmune disorder? Well, I do. It’s most likely rheumatoid arthritis (that’s what I call it for the shorthand) or possibly psoriatic arthritis. Both diseases have similar prognoses and treatments, so which one it is doesn’t really matter. We caught it early, so I’m lucky.
But, living with this disease has been challenging on many levels. This past week I had what I now recognize as a “flare.” I think it was the worst one I’ve had (though my brain tends to minimize/forget previous pain so I can’t be sure). I was close to tears on and off throughout the day for a two or three days. If I stopped moving, starting to move again was excruciating (words fail). I was weak in ways I’ve never experienced — holding my coffee mug made my arm tired? Anyway, my rheumatologist is wonderful and accessible via the patient portal. I’ve started a short burst of prednisone and found relief almost immediately (within the first day).
The medications I take regularly to treat this disease impact my immune system. It’s not that I don’t have an immune system, my doctor assures me, but there is a pathway that isn’t there at the moment. A different pathway will be knocked out and the current pathway will be back up when I change medications in a week or so as part of our years-long exploration of what treats these symptoms best. (I did take Tr*mp’s favorite, Plaquenil (hydroxychloroquine), for a while but it didn’t resolve my issues.)
During this pandemic, having an even slightly compromised immune system adds to my daily awareness that we all need to look out for each other. You don’t know who might be high risk, so we need to assume everyone is. You don’t know for sure that you don’t have COVID-19 (so many are asymptomatic) so if you care about people other than yourself, you need to wear a mask. Please.










